Are my medical history and genetic testing results confidential?
ChristianaCare will keep your personal and family history — and your genetic testing results — strictly confidential. We will not release your personal results to anyone without your consent. Of course, you may decide to share your results with family members so they are aware of genetic conditions that may run in your family, but we will not release your personal results to anyone without you first authorizing us to do so.
It is important, however, to understand that your results will become part of your medical record and therefore may be available to your insurance company or an employer who provides your benefits. Your genetic counselor can help explain how this might affect you before you decide to go ahead with genetic testing.
Your genetic counselor will also discuss the rights and privacy protections covered under the laws of the Health Insurance Portability and Accountability Act (HIPPA) and the Genetic Information Nondiscrimination Act (GINA) of 2008.