Kidney Transplant Education Resources
Educated patients have the best outcomes. We believe that educational resources for our patients and families fosters better kidney transplant and living donation care.
Within each stage of our process, we offer these materials at a reasonable pace with additional information and examples to help patients and families know what to expect and how they can best be prepared.
Much of this information has been collected from sources that include CMS and UNOS/OPTN policies and guidelines and industry partners.
All materials in this section are for patients needing a kidney, before and after transplant.
- Transplant Candidate Evaluation (PDF) — This presentation is provided to patients on their evaluation day.
Introduction to Transplant
This training module will provide you with an overview of the transplant process and key information you will need to know while waiting for a transplant
- Introduction to Transplant Training Questionnaire
Living Donor Champion Training
Finding a Living Donor: The Fast Track to Getting a Kidney
This training module and its accompanying materials provide waitlist candidates with an approach to either recruit an advocate to assist in helping them find a living donor or help them directly find themselves a living donor.
Other Living Donor Champion Resources
The Big Ask: The Big Give
Visit the National Kidney Foundation’s website for more information about living donation. Stay tuned for The Big Ask: The Big Give interactive workshops in to be held in 2018.
Be Ready for Transplant
Midstream Clean Catch Urine Sample Collection
Learn how to perform a midstream clean catch urine collection for females. (From Virginia Tech Health Education at the Schiffert Health Center.)
- Maintaining a Healthy Lifestyle (PDF) — This resource is to help patients maintain a healthy lifestyle after transplant.
- Over the Counter Medicine Safety for Kidney Donors (PDF)
- Over the Counter Medicine Safety for Transplant Recipients (PDF)
A pillbox is an important tool to help you stay on track with taking your medicine. You will be shown how to fill your pillbox when you are in the kidney transplant office.
You may figure out a new way that works better for you. It’s not important how you fill your pillbox, as long as the right medicines are in the right spots.
Filling your Pillbox: Standard Method
The video below can help refresh your memory on the way that you learned in the kidney transplant office (standard method):
Filling your Pillbox: One Day at a Time Method
This video shows a different way to fill your pillbox (one day at a time method), which you may like to try:
Social Worker’s Corner
Families also use Five Wishes to help start and guide family conversations about care in times of serious illness. Five Wishes is helpful for all adults – everyone over 18 years old – and anyone can start the conversation within a family. Sometimes it begins with grandparents and other times it is the younger family members who bring up the topic. Regardless of your age, you can bring this gift to your family.
If you want to get started right now, you can use Five Wishes Online to complete and print a customized document immediately, and share instantly with those you care about.
The National Living Donor Assistance Program assists some living donors with financial support to cover the costs of transportation and lodging for donor evaluation, surgery and followup. This web info is available in English and Spanish. This application involves the donor, recipient and transplant Social Worker.
Patient Access Network is also known as the PAN Foundation, is where patients can go to apply for co-pay assistance for medications. Or the you can call for English and Spanish: 1-866-316-PANF. These applications can be initiated by the patient, but the social worker must complete a portion with medical information.
Weight loss can be a challenge before or after transplant. Here are some tips that may help you along the way to your ideal weight.
Phosphorus is a mineral found in almost all foods. It works with calcium and vitamin D to keep your bones healthy. Healthy kidneys keep the right amount of phosphorus in your body. When your kidneys are not working well, phosphorus can build up in your blood. Too much phosphorus in your blood can lead to weak bones that break easily.
My Transplant Coach
My Transplant Coach is an interactive decision aid to help kidney patients learn about and understand their condition, and assist them in making healthcare decisions. Part of the family of educational programs available through Explore Transplant, My Transplant Coach is an interactive, online, video-based decision aid for patients with kidney failure. It uses animated videos and personalized graphs to help patients understand what treatment options are available, so they can make informed decisions that are right for them.
Living Well with Kidney Failure
Living Well with Kidney Failure is an educational video series on DVD with six companion booklets in English, Spanish, and close-captioned text that helps you educate patients and their families about kidney failure and its treatment.
To order a copy today, visit the online store. Single copies are FREE for patients and their families.
Kidney Failure Patient Stories
UNOS Kidney Transplant Learning Center
The kidneys are a vital organ in the human body. More than 600,000 Americans currently receive treatment with dialysis or have received a kidney transplant to stay alive. Learn more about kidney disease, prevention, and treatment through our Kidney Transplant Learning Center.
Living Donation Resources
This section includes materials for patients who want to give a kidney.
Introduction to Living Donation
Patients will be provided an Introduction to Living Donation presentation that covers the basics of our criteria, process and the most critical details to a successful experience.
Patients and family members will have the opportunity to engage the transplant team for specific questions.
This presentation is provided to living donor candidates during their evaluation.