Educated patients have the best outcomes.
We believe that educational resources for our patients and families fosters better kidney transplant and living donation care.
Much of this information has been collected from sources that include CMS and UNOS/OPTN policies and guidelines and industry partners.
READ: Transplant Evaluation Candidate Education (PDF)
LEARN: Introduction to Transplant Training Module (video) to provide you with an overview of the transplant process and key information you will need to know while waiting for a transplant.
READ: Making Your Living Kidney Donor Transplant Happen (PDF)
SHARE: Living Donation Brochure (PDF)
LEARN: Introduction to Transplant Training Module (video) to provide you with an overview of the transplant process and key information you will need to know while waiting for a transplant.
READ: Maintaining a Healthy Lifestyle (PDF) - This resource is to help patients maintain a healthy lifestyle after transplant.
A pillbox is an important tool to help you stay on track with taking your medicine. You will be shown how to fill your pillbox when you are in the kidney transplant office.
You may figure out a new way that works better for you. It’s not important how you fill your pillbox, as long as the right medicines are in the right spots.
Veloxis Patient Assistance Program
Most insurance companies do not cover the commonly prescribed post-transplant medication, Veloxis. The Veloxis Patient Assistance Program provides financial support for patients who meet certain criteria. Complete the patient enrollment form at the link above to see if you qualify.
National Living Donor Assistance Program
The National Living Donor Assistance Program assists some living donors with financial support to cover the costs of transportation and lodging for donor evaluation, surgery, and follow-up care and loss wages and childcare expenses. Information is available in English and Spanish. This application involves the donor, recipient and transplant Social Worker.
Aging with Dignity: Five Wishes
Families also use Five Wishes to help start and guide family conversations about care in times of serious illness. Five Wishes is helpful for all adults – everyone over 18 years old – and anyone can start the conversation within a family. Sometimes it begins with grandparents and other times it is the younger family members who bring up the topic. Regardless of your age, you can bring this gift to your family.
If you want to get started right now, you can use Five Wishes Online to complete and print a customized document immediately, and share instantly with those you care about.
Patient Access Network is also known as the PAN Foundation, is where patients can go to apply for co-pay assistance for medications. Or the you can call for English and Spanish: 1-866-316-PANF. These applications can be initiated by the patient, but the social worker must complete a portion with medical information.
Phosphorus is a mineral found in almost all foods. It works with calcium and vitamin D to keep your bones healthy. Healthy kidneys keep the right amount of phosphorus in your body. When your kidneys are not working well, phosphorus can build up in your blood. Too much phosphorus in your blood can lead to weak bones that break easily.
My Transplant Coach is an interactive decision aid to help kidney patients learn about and understand their condition, and assist them in making healthcare decisions. Part of the family of educational programs available through Explore Transplant, My Transplant Coach is an interactive, online, video-based decision aid for patients with kidney failure. It uses animated videos and personalized graphs to help patients understand what treatment options are available, so they can make informed decisions that are right for them.
Living Well with Kidney Failure is an educational video series on DVD with six companion booklets in English, Spanish, and close-captioned text that helps you educate patients and their families about kidney failure and its treatment.
To order a copy today, visit the online store. Single copies are FREE for patients and their families.
The kidneys are a vital organ in the human body. More than 600,000 Americans currently receive treatment with dialysis or have received a kidney transplant to stay alive. Learn more about kidney disease, prevention, and treatment through our Kidney Transplant Learning Center.
READ: Transplant Evaluation Candidate Education (PDF)
LEARN: The Living Donor Education (video) training modules provide you with an overview and key information about the donation process.
Medical Arts Pavilion 2 (MAP 2), Suite 2224
4735 Ogletown-Stanton Road,
Newark, DE 19713